Transplant Community Should Stop Blaming Others About Public's Doubts About Organ Donation
A poll has come out about the public's attitudes toward organ donation that allegedly shows us as ignorant and unduly distrustful of the system. I think this requires a closer look. From the story "Lingering Myths Discourage Organ Donation":
Only 38% of licensed drivers have joined their states' organ donor registries, with many deterred by long-held misconceptions about how the transplant system works, according to poll results released in April. The survey of 5,100 American adults, conducted on behalf of the organ-donation advocacy group Donate Life America, found that:Perhaps that is because people realize that medical ethics have taken a distinct utilitarian turn in recent years, what with futile care theory and health care rationing in the offing. Knowing that people with severe cognitive disabilities are being disdained by some as "non persons" and looked upon as potential natural resources, adds to the fear. It is unreasonable to expect folk to compartmentalize organ donation from the rest of the problems with health care.
50% think that registering as organ donors means physicians will not try as hard to save their lives.
44% say there is a black market in the U.S. for organs or tissue.That's because some people like Mickey Mantle seem to be able to avoid the triage system. Besides, there is a black market overseas at which some Americans go shopping.
26% believe that patients determined to be brain dead can recover from their injuries.Perhaps that is because the criteria utilized to declare death by neurological criteria are not uniform throughout the country and in at least a few cases, supposedly brain dead people "woke up." Also, too many people in the media use the term "brain death" far too loosely, such as calling Terri Schiavo brain dead, when, before she was dehydrated to death, she was clearly alive.
Rather than look in the mirror for the causes of these "myths," the medical community seems to blame Hollywood:
Many in the transplant community blame the popularity of these misconceptions on Hollywood movies and TV shows that wrongly portray the organ donation and transplantation process...Susan E. Morgan, PhD, professor of communication at Purdue University in Indiana, has done extensive research showing how these story lines affect people's views of organ donation. She said the transplant community needs to tackle these myths head-on in its publicity campaigns, instead of focusing primarily on the benefits of transplantation.Physician heal thyself: If the transplant community got its act together across the country--and adamantly shot down the many proposals made in the world's most respected medical journals to open the door to killing for organs--the public might be less wary.


13 Comments:
Wesley-
You're right. It angers me that these
concerns are being downplayed in the media. These issues are exactly why I
have re-thought donating my organs, although I haven't completely made up my mind.
Even though on my driver's license it says I'm registered as an organ donor (because at the time I *got* my license, I thought signing up was the way to go, for the betterment of humanity), I'm carrying a card in my wallet that specifically states that I don't want my organs donated, period, end of story, with my signature on it. I'm half-tempted to go to a lawyer and get a legal document to supersede the mobile organ donor thingie on my license, just so they can't say, "Well, it was jotted down on an 3x5 index card, so clearly it's not intended to be an accurate assessment."
Only, the whole out-of-work-no-money thing keeps cropping up.
I'm getting tired of all the slag I've been hearing in the *news* (not from Hollywood, mind you) about organ donation. Until they resolve the issue, I don't think I trust doctors to give me a fair shake if I get into a head-on with a semi. If they're going to take my organs, I'd rather my brain be a pancake before they try. At least then there's a pretty good shot I'm not still alive and they are just convinently overlooking the fact.
TE-I would invest in a second copy of
my drivers license, if I were you!
Yeah, I'd say their "problem" is that people are becoming too informed, that folks are learning that "brain dead" is not dead. When was the last time you saw a dead person moving?
Personally, I think it is far more the mis-assessment of Terri Schiavo as "Brain Dead" that is to blame for that concern than it is the more technical (but important) issue of the criteria for Neurological Death.
Maybe it's some of both, Ken. I know for me the tipping point was a series of anecdotal cases of "brain dead" people reviving while doctors were pressing the families to sign organ donations papers. Then it became a matter of the more I knew, the less I liked it.
And think of it from a Judeo-Christian standpoint. There's a specific Commandment against coveting ANYTHING that is your neighbor's. I'd say that includes his heart and lungs and liver. Being on an organ waiting list is waiting for somebody else to die a sudden death so you can have his organs. What's more ghoulish than coveting somebody's organs and waiting for him to die? The fact that you're not waiting for anybody SPECIFIC to die doesn't make it any less ghoulish.
I'm not saying I blame the people on the transplant list. I'm saying that we never should have walked down this path in the first place, where we're putting people in that situation.
For me, organ donation was always an affirmation of life-I thought it was wonderful that I could give another person life even as I was dying. But then, I expected my doctors to attempt organ transplant only after intense efforts had been made to save my life and I was indisputably brain dead. But now, I do not trust my doctors to make that determination or do everything in their power to save me if I sustain a head injury.
I refuse to sign the back of my driver's license. My husband knows that he has full decision making powers (we haven't put it in writing yet, which is something we need to stop putting off because of the creepiness), followed by my mother. I know most doctors aren't butchers, but the idea of one limiting my care simply to ensure my organs are healthy puts shivers down my spine.
As far as blaming the media...Really? I mean really? I've known several EMTs who have horror stories of ER docs saying, "Why didn't you do XYZ? This guy was an organ donor!" The EMTs did everything in their power to make sure the patient survived, but the doctors were upset that those measures ended up "spoiling" the organs.
Bingo, Wesley!
When my license expires next year perhaps I can ask them to take it off.
There is now a website for Americans to enroll their preference not to be an organ donor. www.donottransplant.com is a donor registry as defined by the UAGA, 2006. By law, any state that has adopted the 2006 version of the UAGA requires OPO's and TB's to search all known donor registries. www.donottransplant.com provides the tools to make sure your wishes are carried out.
I went to DoNotTransplant.com, and they charge for their services. Does anybody know of a non-donor registry that does not charge?
GrannyGrump: The USA does not have presumed consent. If you don't have a donor card, you are not presumed to want to donate.
But your next of kin can consent for you if they don't know your wishes.
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