Friday, May 22, 2009

Cutting Off Healthy Limbs to Treat BIID Coming Closer to Reality

There is nothing these days that can ever be safely considered to be permanently beyond the pale, unthinkable, flat-out undoable--and that apparently includes cutting off healthy limbs of patients with BIID.

When I first heard of body integrity identity disorder--BIID--in which sufferers have a powerful compulsion to become amputees (hence the nickname for the term, "amputee wannabe"), the idea that cutting off healthy limbs would ever be considered a legitimate treatment option seemed ridiculous. No longer. An influential psychiatrist is using the power of analogy to push us toward that very end. From the story:

"It actually sounds a lot like another condition which we already do recognize called gender identity disorder--where, for example, people are born as a male, but feel they're really a woman trapped in a man's body," said Dr. Michael First, a professor of clinical psychiatry at Columbia University in New York City, who has been studying this rare condition since 1999. "Typically it's more common legs than arms, there are people who want bilateral amputations, and I actually know of someone who has achieved that," he added.
Achieved multiple amputations! Can you imagine describing a maiming in that positive way?

First says in the story that he coined the term body integrity identity disorder with the explicit purpose of linking the condition to gender disorders--the treatment for which includes surgeries to amputate healthy breasts and genitalia. Indeed, once we opened the door to surgically removing or altering healthy body parts based on mental compulsions or desires, what made anyone think that there would ever be a stopping point?

BIID is not recognized in the Diagnostic and Statistical Manual of Mental Health Disorders (DSM-IV-TR), a book published by the American Psychiatric Association and regarded by most of the mental health community as the bible of identified mental illnesses. But First, as editor of the last two editions of the DSM, is working to change that, in an effort to create a reference for mental health professionals to use in identifying and treating the condition.

"Number one--for the people who have it--there's a whole issue of labeling something as a disorder, and there are pros and cons labeling," he said. "The disadvantage of labeling is stigma. We're basically saying this is a mental illness--this is a sickness. But the advantage of having it in the book is twofold. It might encourage more work on treatment by getting it on the map and getting therapists and people aware of it."

Mark my words, even though today virtually all of these unfortunate people get through life without chopping off their own limbs, we will eventually see BIID sufferers receive amputations. And once amputation is deemed to be a legitimate treatment for BIID, it will be harder for sufferers to fight against actually doing the deed. Oh, and surgeons who don't want to participate in removing healthy body parts had better hope that conscience clauses are put into effect, since there are already proposals on the table to require their participation or referral.

But here's the thing: Once amputations become as routine as surgical sex reassignments, we will "discover" another, even more extreme condition, that will also have to be accommodated. You see, there is no limit to how far into the macabre and harmful that terminal nonjudgmentalism has the power to take us. We are falling into a bottomless pit.

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27 Comments:

At May 23, 2009 , Blogger Leslie said...

And one hopes the insurance companies
will march, lock step, with the PC patrolled
procedures!

 
At May 23, 2009 , Blogger enness said...

It gets more and more ludicrous every day...that we have to legislatively protect doctors just for being consistent with their job description!

 
At May 23, 2009 , Blogger Sean said...

Forgive my language Wesley, but WTF would you have us do?

You say:
"even though today virtually all of these unfortunate people get through life without chopping off their own limbs"

Yeah, we "get through". But that's it. We're not living. We're surviving. We're going through the motions. Our lives are HELL.

And what if the loss of a limb, or the paralysis of legs make our lives better? Who are you to decree that a "normal" body is, ipso facto, better?

It's not like we're asking to feel this way. It's not like psychotherapy is *actually* helping. It's not like pharmacotherapy *actually* makes one fucking whit of difference.

If you're not willing to accept surgery as a suitable treatment to BIID, you might as well send me straight to Jack Kevorkian.

 
At May 23, 2009 , Blogger Unknown said...

For God's sake, how do they KNOW that it will make their lives better? What if it doesn't? Then what do they do? It's like with "living wills" -- can't know what haven't yet experienced. There are surely worse hells than being burdened with all one's arms and legs. Are doctors going to have conscience clauses about this now, too? On top of which, they've got a DISORDER? That has to be indulged, now?

 
At May 23, 2009 , Blogger Unknown said...

I meant, they've GOT a DISORDER, by their own definition -- and disorders have to be indulged?

 
At May 23, 2009 , Blogger Sean said...

lanthe, how do we know? Because everyone who has managed it is happier. they say their only regret is to not have done it sooner.

Besides, nothing else works. Nothing.

Show me a treatment that works, outside of surgery, and I'll take it without a second thought.

It isn't about indulging a disorder. It is about treating a disorder.

Besides, there's now evidence that BIID is not only psychological but neurological.

 
At May 23, 2009 , Blogger victor said...

This topic reminds me about the story I heard concerning a guy who was suffering with stuttering and he was so sad that he traveled to China to see a doctor and believe it or not this guy was told that the reason he was stuttering was because his sexual organ was causing the problem.

Anyway to make a long story short, he has "IT" removed and to make another long story short, he's back in sometime later to see that same doctor wanting "IT" all reversed again because he feels worst that before to which the doctor replies.

Aaaaa Deeeel is a Deeeel :)

Peace?

 
At May 23, 2009 , Blogger Wesley J. Smith said...

Sean: Thanks for coming back. Doctors should not cut off healthy limbs. I am sorry, but I think that is very important.

What if someone becomes obsessed with being a ventilator dependent quadripligic, should someone sever their spinal cord?

 
At May 23, 2009 , Blogger Sean said...

Wesley, you are taking the position that "physical health" is more important or more valid than "mental health". That is a very narrow view of "health". Let's say I were to agree with you (which I don't). Let me ask you, what do you suggest people with BIID do, then?

People are *very* good at saying that people with BIID shouldn't receive elective surgery. Very good at telling us that we need "help". But nobody has managed to offer any viable solution to date.

Please don't tell me what I "can't" do. Tell me what I *can* do that will work to actually relieve my pain.

 
At May 23, 2009 , Blogger Wesley J. Smith said...

Sean: For surgeons, I think physical health does have to count more than mental health. One is objective, one is subjective. And you didn't answer my question about the person compuslively desiring to become a ventilator dependent quadriplegic.

As to your pain, I don't have an answer. There are people in terrible back pain, which is physicial I know, but for whom no treatment is effective. I don't have an answer for them either, but I don't think we can permit doctors to kill them to alleviate their suffering.

I don't know how old you are, but the man in the story I linked was growing elderly and managed to live with his suffering lo these many years. You seem to have too. The power of human strength is awesome to behold, and is a wonder of life. We all owe you our care, our sympathy, our emptahy, and our support. But I don't think we owe you acquiesence in undercutting the ethics of medicine and permitting physicians to harm their patients, even when that is what the patient wants.

I care about your pain. I care about your limbs. I care about maintaining the ethics of the medical profession. I care about how we treat people who are suffering. I care about the consequences that would flow from permitting amputation for BIID. There is much at stake in what is becoming the BIID debate.

 
At May 23, 2009 , Blogger Sean said...

The difference between someone with chronic back pain for which there is no solution and BIID is that there *is* a solution to help with BIID, however unpalatable you find it.

I have been living with the suffering of BIID for 35 years. I am 40 years old. I can probably continue like I've been going for another 30 or 40 years. But to what goal? What is the point of spending 70 or 75 years suffering? I just don't have it in me to be a martyr.

The question of "harm" is a complicated one, isn't it? I reiterate that health should be viewed as a whole, body *and* spirit, and that "harming" the body can and does result in improved overall health.

As for the ethics of medicine, I tend to agree with Bayne, Levy, Savulescu, Ryan and several other philosophers & ethicists & doctors who make a solid argument in favour of elective surgery being ethical in some cases. Is it really more unethical to amputate a limb or do a spinal cord transection for someone who has BIID than it is to do a masectomy and penectomy for someone who has GID? Is it really more unethical to help someone who has BIID than it is to provide repeated plastic surgeries to people who are "addicted" to plastic surgeries?

As for someone who needs to be a vent dependent quad, if they have BIID, and are as informed as possible about their condition, I would tend to let it happen. Who am I to decide what is good for them or not? The question is more complex than that, I'll grant (should they receive "benefits", who pays, etc), but by and large I have no objection. The thing you seem to "miss" is that BIID is not an obsessive desire. It's a need.

Further, it very much looks like it's the result of a neurological difference in the brain, as Ramachandran & McGeoch have recently published.

 
At May 24, 2009 , Blogger Unknown said...

Sean: So because it's worked for everyone else it will work for the person in question? Everything you are saying is just in service of an obsession. If it's neurological, treat it NEUROLOGICALLY, NOT SURGICALLY. But let not the tiniest hair on the tiniest mouse, or any other non-human animal, be TOUCHED in "experimentation" to "develop treatment." From what I've seen, the world can do better without a lot of people with obsessional disorders, and if you guys really want a cure, go experiment on each other and develop it. But don't drag healthy people into the service of your sickness.

 
At May 24, 2009 , Blogger Unknown said...

SEAN: And don't give us that "need" garbage -- obsession IS need. You're sick, as you yourself have said, and by definition aren't to be given credibility -- and the healthy are to be protected from the sick, not to have to alter the sane and healthy way of doing things to indulge them.

 
At May 24, 2009 , Blogger Unknown said...

Ianthe: Who said anything about bring healthy people into it? Those of us that have BIID are willing to undergo surgery to relieve us of the pain we deal with on a regular basis. We are well aware of what our life will be like as an amputee, para, or quad, yet we are still willing to go through with it. In regards to experimenting on each other, no. I don't want to bleed out because someone messed up. I'd rather have someone who knows what they are doing (A surgeon) do it for me in a sterile environment.

Do you remember the days when people who wanted a sex change were shunned from everyone? How about the first women to get breast implants, or nose jobs? What about a gastrol bypass? The first people to get those were "experimented" on. Those people wanted it. They were made well away of what they were getting into. I bet if you asked those people if they regretted it, they would say no. Everyone I've spoken with that has actually received an amputation stated that their QUALITY of life increased 10 fold at least. Marriages that were falling apart are suddenly better, depression disappeared, and no one was negetively effected otherwise.

It's my body, and if I choose to become a paraplegic, that is my choice. Why is it I can go get my penis cut off because I don't think it's mine, or whatever reason that individual has, but I can't get my leg cut off, or my arm cut off, or whatever it is that individual has.

You are right, we are sick. We are sick of people telling us what we can and can not do with our body. We can not be given credibility? Why? Because you don't understand what we have to deal with? Who is the better witness to a crime: The person it happened to, or the shrink the person spoke to about it?

If the option to have surgery to relieve me was presented to me, I would jump at the offer. Ask anyone who has this, and they will tell you, NOTHING they have tried has worked. Sean has been dealing with his for nearly all of his life, as far back as he can remember, yet he still feels the same way day in and day out.

I've told my wife my feelings, and she is fine with it. If she is ok with it, I'm OBVIOUSLY ok with it, then why can't it be done if it is what I want? If I can't get it, then tell me what I am suppose to do.

 
At May 24, 2009 , Blogger T E Fine said...

Seth -

It's a sickness, no different from the sickness that I have as a major depressive. There are days when the pain of living is so great that I want to take myself out of the world just to get away from it.

I don't know *your* pain. I never can. All I know is that it stinks, just as badly as mine does, and that I would never wish your condition on my worst enemy.

Destroying the body to sooth a mental illness isn't good in the long run, either for the individual or for society. It's not good to see you suffer. It's not good to see you hurt yourself, either.

The Lord knows I have my share of faults and have no business judging you. I don't. I worry for you and hurt for you because I'm not God and I can't fix things even though I want to very badly.

It seems to me that giving in to the desire to amputate is giving up all hope. It's like suicide - my life isn't worth anything. I have to do something radical to change things. Maybe it'll go away.

Amputating a limb doesn't repulse me. There's nothing gross or weird about it. I know a guy who was born without either arms or one foot, and I always enjoyed waiting on him when I worked at the grocery store because he was a nice *person* to talk to. I'm not repulsed by your desire to take off a limb.

What bothers me is that someone can think that anyone, even himself, is not worth keeping intact. That the body is something we simply adorn ourselves with, that can be cut up or discarded whenever we want, because either it doesn't matter or the person inside it doesn't matter, or because there isn't a person inside (it's just a talking lump of meat) and there's nobody there to matter.

I don't want you to hurt. But I don't want you degraded to a sub-human status: "He's an amputee and is no longer productive, so there's no point in keeping him." "He's deranged and there's no point in keeping him because he's not a good producer."

I'm not saying that getting yourself amputated would cause that, I'm saying that if society keeps going the way it's going, pretty soon people will either be "good enough" or "not good enough," and people will be even more disposable than they are already.

People stop mattering when we stop thinking of them as people. Start thinking of them as meat to be hacked off at the first inconvinence, and there you go. It's just a big snowball.

 
At May 24, 2009 , Blogger victor said...

Tabs, are you sure you're not a Saint in disguise and don't know about "IT" yet? :)

Hang in there Sean cause many at SHS will be praying for you and God knows I'm not trying to be sarcastic on a Sunday.

God Bless,

Peace

 
At May 24, 2009 , Blogger Lydia McGrew said...

Unfortunately, the guy quoted in the main post, though ethically badly messed up, is probably sociologically right that having this declared a disorder will facilitate making it mainstream to remove healthy limbs. That has certainly been true of removing healthy genitalia for people with mental problems relating to gender-identity confusion. I have been astounded at how people think it is a response to my statement that healthy genitalia should not be removed to tell me sententiously, "But these people really do have a recognized disorder." Right. I agree. And it follows from that that their genitalia should be removed how? We are seeing the very same dynamic here in this thread. Commentators point out that by people's own admission, this sense of "alienation" from one's limbs is a _disorder_. There's something _wrong_ there. The response is, "Right. It's a disorder. So something _must_ be done about it, up to and including removing all four healthy limbs, if that's how alienated the person feels."

So I think that having BIID officially included in the manuals probably will make for the same pseudo-scientific defense of the removal of healthy limbs as a treatment as we have seen in other areas. People will get very solemn and tell us that now it's been officially declared a disorder, so it's _unscientific_ to oppose the removal of the limbs.

 
At May 24, 2009 , Blogger HistoryWriter said...

lanthe: how do we know that ANY lifestyle choice we make is "going to make our lives better"? The fact remains that this kind of surgery is entirely elective, and most likely no insurer will have to pay for it. I have to agree with Sean: WTF would you have us do? Protect every fool from his own folly? A side-effect of living in a democracy is that people are able to harm themselves in so many ways (smoking, drinking, immoderate sexual activity, and so on) without their neighbors being able to interfere. So why not amputation-on-demand? I see little difference between that and demanding the "right" to ride one's motorcycle without a helmet.

 
At May 24, 2009 , Blogger victor said...

You aree being sarcastic right HistoryWriter? :)

 
At May 24, 2009 , Blogger SAFEpres said...

I wish he was, Victor. Tabs-thanks for sharing your history of depression. I, too, suffer from this disorder and have times when I just want it to stop. It's important for people with this disorder to keep speaking out and showing that it isn't something to be ashamed of, and it is something that can be managed.

Sean, I don't know what the answer is for you, but you will be in my prayers.

 
At May 24, 2009 , Blogger Sean said...

@Lante, yes, I am sick. But I am not unable to make my own decision. My condition is not rendering me incapable of logical thoughts. People with BIID are not delusional. Not psychotic. And that's not me saying that, but the research on BIID repeats that over and over again.

FWIW, I posted on my blog a reaction to this post. Y'all are welcome to comment there as well.

What do they suggest we do with BIID?

 
At May 24, 2009 , Blogger Wesley J. Smith said...

Sean: I went to your site. You want to become an L-2 paraplegicm which means that you want your spinal cord severed at the L-2 level, not your legs cut off.

Is that BIID?

Whatever it is, your site demonstrates my point that once this door is opened (further), there will literally be no limit.

If someone is obsessed about being a burn victim, should we set them on fire?

 
At May 24, 2009 , Blogger Unknown said...

Sean: The healthy people being brought into it include the doctors, who shouldn't have to do what is against their own ethics. If it's a neurological problem, treat it where it starts, not where it's projected onto.

HistoryWriter: That doesn't follow.

 
At May 24, 2009 , Blogger victor said...

>>If someone is obsessed about being a burn victim, should we set them on fire?<<

Definitely not Wesley, that's "Satan's Department"!

I hear ya! Now you're really being sarcastic Victor. :)

For my punishment, I'm going to say a prayer for Sean and especially for me, myself and I cause God knows we need "IT" right now.

God Bless,

Peace

 
At May 24, 2009 , Blogger Sean said...

Wesley, yes, that is correct. My BIID does not express itself through a need for amputation, but one for paralysis.

Yes, it is BIID. Most of the literature speaks about amputation because that was the first BIID-related need. But there are other conditions someone with BIID might need. Deafness, or blindness are two other common conditions.

Dr. Michael First is currently conducting a follow-up study to his original one with views to "formally" expand the understanding of BIID.

 
At May 25, 2009 , Blogger HistoryWriter said...

Victor: No, I'm not being sarcastic at all when I say we can't go through life protecting fools from their own folly. Prohibition didn't stop alcoholism, and raising the price of cigarettes to $5 a pack hasn't stopped people from smoking. So in my humble opinion, if someone is stupid (or crazy) enough to want to maim himself, who am I to stop him?

 
At May 25, 2009 , Blogger victor said...

>>Prohibition didn't stop alcoholism, and raising the price of cigarettes to $5 a pack hasn't stopped people from smoking.<<

I guess we could go on and on giving examples right, but where, when and who will draw the line?

I hear ya HistoryWriter? Maybe your Jesus might be able to shine a little light on "IT"

By the way History writer please tell Wesley that I've just tagged him and he's "IT" now! :)

Peace

 

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