"Awakenings:" Fighting Schiavo Revisionist History and Standing Against Dehydrations
I have a piece in the current Weekly Standard about the "food and fluids" controversy, an issue I have repeatedly considered. I hit several notes in the article. I challenge the falsehood that the federal bill to save Terri Schiavo's life was purely a Republican enterprise. Not true, it was a bill that was supported broadly by both parties. Indeed, as I report:This myth has become a staple of the Democratic presidential campaign, despite the fact that the denigrated legislation was enacted in almost record time by one of the most bipartisan congressional margins seen during the Bush presidency. Indeed, passage in the Senate required unanimous consent, which means any senator--including presidential candidates Hillary Clinton, John Edwards, Joe Biden, and Chris Dodd (but not Barack Obama, who was not yet in the Senate)--could have stopped the bill in its tracks by simply saying no. None did so. Just as they voted for the Iraq war and later opposed it when it became unpopular, these Democrats pretend they were not essential players in the federal effort to save Schiavo's life. (The bill also received support from about 40 percent of House Democrats.)
I also spend some time detailing two recent cases of the unexpected awakenings, e.g., Jesse Ramirez and Haleigh Poutre, that barely prevented their slow deaths by dehydration. And I remind readers of the hopeful experimental treatments that have apparently awakened people who were unconscious. But these developments barely penetrate the public consciousness.
I close with a call to those who know that dehydrating these helpless people is wrong to take heart and recommit themselves to the cause of saving lives:
A serious cultural consequence of the Terri Schiavo drama has been the devaluation of the weakest among us into a disposable and exploitable caste. But it is not too late to reverse the tide. Jesse Ramirez, Haleigh Poutre, and the groundbreaking research into the treatment of serious brain injury are powerful reminders that where there is life, there is hope. Those who understand that all persons, regardless of capacity, deserve to be treated as beloved members of the human family have good reason to shake off the Schiavo rout and return to the fray.
Labels: Food and Fluids Cases


10 Comments:
Good Article Wesley! Are you also aware that Stem Cells are being used to treat anonic brain injured patients in China? I know you have contraversal views on stem cell use but China does use nonembroyonic stem cells.
I am wary of Chinese treatments of any kind. There is too much money involved and too few regulations. Quackery is rampant and the safety of some of these potential treatments has yet to be determined.
That is one the main concerns from American doctors. Nevetheless, I have read about numerous families taking their brain injured loved to China for Stem Cell treatment. Some are even taking repeated trips. The treatment has only given slight improvment to these anoxic brain injured patients but they believe with time and repeated efforts they will see more improvement. Each case is unique. Given the difficult circumstances these families are in, they are willing to accept the risk of China Stem Cell treatment.
Since the Bush admin wont support full and open stem cell research for all types of stem cells – then you can expect longer delays, less options, and further obstruction to medical advances. It is an unfortunate thing when George Bushes policy decides our healthcare options.
The idea that ESCr has not cured all diseases after a couple of years of research so it should be abandoned is only proposed by deceivers who are not putting their hearts into ASCr but rather shilling for the anti-abortion movement while hijacking a one sided ASCr issue, an issue they knew nothing about until they decided they were against ESCr.
Its so dishonest…
Dark -
Aside from the fact that ASCR uses stem cells from an adult patient and ESCR uses stem cells from an embryo, what's the difference? What makes ESCR better than ASCR? Why is it so necessary that "full and open stem cell research" include ESCR?
As I understand it, a stem cell is a cell that has no original purpose but will later turn into various cells (skin, eyes, etc) when needed. So how is it dishonest if we say, "Hey, instead of getting everyone's feathers ruffled, why don't we use stem cells from alive adult humans instead of killing an embryo to get it?" Aren't the stem cells basically the same?
And isn't it better to use your own stem cells from your own body than to use an embryo's cells? After all, there's some DNA in the donor egg that will change the embryo's DNA, so it won't be an exact duplicate of your own. Add to that the fact that your body already knows the cells it produces and will have to learn (and possibly reject) cells from outside, and it seems to me it's just more logical to avoid embryonic stem cell research.
But really. Aside from the source, what's the difference?
Why do ESCR advocates always neglect to consider the rejection risk involved with ESC's? Don't they understand that ESC's (being designed to build babies, not specific organs) are more likely to migrate all over the body? When the body rejects these ESCs as foreign intruders, and it most certainly will, the rejection reaction will be catastrophic. Also, since they blend with the DNA of the recipient, I'm guessing there could have all sorts of unexpected reproductive consequences. Of course, we won't know that for a long time since there are NO ESC cures to date.
I have received an unusual number of communications from people in response to this article. This one, from a woman who was once comatose, touched me in particular. It was very long and warm, which was very humbling since it would have taken my correspondent a long time to compose it. Here is an excerpt:
"My heart breaks every time I think of Terri. Her difficulties were always on my mind. Her families' pain was so unbearable. Many times I wished I could have taken her place. During her last days on this earth I could barely make myself eat. I had a pain in my heart, pressure inside my head and a squeezing pain in my stomach that made me feel like I was right there with her. I was sick the same week Terri passed away, then the Pope passed away, and then one of my horses had a fatal injury. It was much more than I could take. It was a week of hell in my mind. Everything I believed about people and their honoring those who were less fortunate than themselves, all my hopes and beliefs that faith and hope would prevail, and Terri would go home to be with the family that loves her, it all washed away like a long, bad dream that I cannot forget. I cannot shake my memory of Terri, who I felt was my sister in this journey of healing.
Just for the sake of it, let's say I came out of my coma and I was to remain childlike and not be able to care for myself, work or live independently?
Then would that determine me worthless? What if I loved and laughed and could encourage others? Then would I have minimal value? What if I could speak up for those that society barbarically chooses to starve to death?
Could I be worth something then? God help me, I am trying to understand why I went through what I did, and how I can use my own experience, my losses, my determination and my compassion for others to see that where there is life, there is always hope. Nobody can take that away from me. Not now.
I want to thank Mr. Wesley J. Smith for speaking up for those of us who feel forgotten, left behind, deemed worthless because we have deficiencies. I was blessed. I have healed far more than any doctor or therapist could have hoped for. I never gave up. I spoke to my ex-fiance the other day and he told me he was amazed at how far I have come. He never thought I could come this far. Am I perfect? No. Am I convenient? No. Am I the same as before? No.
I am alive. I am loving, funny, creative, caring and encouraging. I do wish that my progress had been captured on a video, so that others could learn from my journey. I may write a book someday. If I can find a way to put it all down on paper and get it published, there is one I will dedicate it to. I'll dedicate it to Terri Schindler Schiavo and to her loving family that misses her so much. My heart pours out to them. We went through that tragedy together. I prayed through every step of the ordeal with them.
Though I have never even met them face to face, I consider them family."
Another touching letter:
"God Bless you. I hope you will continue writing stories of "awakenings", survival, beating the odds, etc...Stories like these can change my outlook on any given day. I also post them in my husband's room for his caregivers to read. I brought him home on July 8, 2005 (his cardiac arrest was 3/25/05) and he's been here ever since. He breathes entirely on his own now, makes rude sounds at times, will smile on occasion, shakes one shoulder/arm sometimes to respond to us. He now weighs 175 lbs., up from 145 in the hospital, and has been infection free since he came home. I wouldn't recommend this for everyone because it's a huge emotional and financial struggle daily, but it can be done.
I don't know why I'm telling you these things. I guess because I think you're actually interested. If you're not feel free to delete the e-mail. I just want you to know that what you write doesn't just affect policy and policymakers. It affects people like me who are up at 3:30 am being a caregiver. Your article made my day by giving me hope for [name] and by knowing that others like you are out there fighting for him.
Don't ever give up writing about the important things in life."
Wesley,
You will see hear and see lots of stories like the ones you posted. Below are some links to other caring stories and web sites:
http://chrisbarnes.blogharbor.com/
http://prayforizzy.blogspot.com/
Wesley -
Thanks for sharing those with us. Those two letters tore me apart when I read them - I feel for those ladies and I'll pray for them. I'm also happy that your website has done so much to make these people's lives just a little easier to bear. Good job.
Dark -
I'm still waiting for a response.
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